'Tom has good reason to believe I was prematurely unempathic.
In these situations, the person with HD is not being deliberately awkward, wilful or unkind – their apparent self-centredness is a consequence of the loss of mental flexibility associated with the disease. Raven writes: 'People with Huntington’s disease may sometimes seem uncaring and thoughtless. Over time, Huntington's took its toll on the marriage. 'But ultimately I didn’t want Anna to be an only child, coping with weird me and having no one to play with.' 'It took us a long time to decide whether to have another child, knowing they would have a 50 per cent chance of inheriting the gene mutation,' writes Raven. There's currently no cure for Huntington's disease or any way to stop it getting worse.īut treatment and support can help reduce some of the problems it causes. But this is usually just because one of your parents was never diagnosed with it. Very occasionally, it's possible to develop Huntington's disease without having a history of it in your family. If a parent has the Huntington's disease gene, there's a:ġ in 2 (50%) chance of each of their children developing the condition – affected children are also able to pass the gene to any children they have You're usually only at risk of developing it if one of your parents has or had it. Huntington's disease is caused by a faulty gene that results in parts of the brain becoming gradually damaged over time. It's usually fatal about 15 to 20 years after symptoms start. Symptoms of Huntington's disease can include: difficulty concentrating and memory lapses depression stumbling and clumsiness involuntary jerking or fidgety movements of the limbs and body mood swings and personality changes problems swallowing, speaking and breathing difficulty moving.įull-time nursing care is needed in the later stages of the condition. Symptoms usually start at 30 to 50 years of age, but can begin much earlier or later. It gets gradually worse over time and is usually fatal after a period of up to 20 years. It's passed on (inherited) from a person's parents. Huntington's disease is a condition that stops parts of the brain working properly over time.
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